AI nika's Visit and Update
Anika got to visit today and she was excited to see Karl. Karl was happy to see her and talk about her wonderful day at school. He even got to help with her homework which we did there. It was also nice because she was in just before he got his first round of demerol, benedryl, zofran(nausea) and IL2. He will be out for a while thanks to the meds.
Unfortunately the nurse assistant Nazi that acts as the floor assistant/secretary came in and wanted Anika to leave because "children aren't allowed"
After the chemo and Karl's nurse Jill explained the "special" situation she left. We had a pleasant visit after that..until it was time to leave. Anika and I had to walk by her on the way out and I got interrogated on "who bent the rules for you" like she didn't believe me! The head nurse of the ICU and Chemo decided that it would be good for Karl. The I got yet another lecture on how this is not the norm. She was pissed because Anika went for a walk down to get ice with daddy and see Angela, our nurse from the last visit. I know she's doing her job really well and doesn't agree with the special nature of our situation. Karl is still the guinea pig for this ICU on chemo treatments but all I kept thinking was JEEZ get some sensitivity here. We sneak in via the service elevators, during NON visiting hours so others won't see her, she stays in the room with the curtain drawn and we try to keep her happy giggles to a minimum and visits to like 30 minutes...what more does she want from us! And you can't tell me that patients in there on end of life situations are allowed to have ALL their family in there to say goodbyes so I know they "bend" the rules.
It just left a really bad taste in my mouth that on top of everything else that I have to deal with up there I didn't need that today.
Enough about me, Karl's spirits are up and he's ready to go go go.
His phone in the room # 279 room phone 972-981-8225. Just ask for Karl Matthiessen.
Unfortunately the nurse assistant Nazi that acts as the floor assistant/secretary came in and wanted Anika to leave because "children aren't allowed"
After the chemo and Karl's nurse Jill explained the "special" situation she left. We had a pleasant visit after that..until it was time to leave. Anika and I had to walk by her on the way out and I got interrogated on "who bent the rules for you" like she didn't believe me! The head nurse of the ICU and Chemo decided that it would be good for Karl. The I got yet another lecture on how this is not the norm. She was pissed because Anika went for a walk down to get ice with daddy and see Angela, our nurse from the last visit. I know she's doing her job really well and doesn't agree with the special nature of our situation. Karl is still the guinea pig for this ICU on chemo treatments but all I kept thinking was JEEZ get some sensitivity here. We sneak in via the service elevators, during NON visiting hours so others won't see her, she stays in the room with the curtain drawn and we try to keep her happy giggles to a minimum and visits to like 30 minutes...what more does she want from us! And you can't tell me that patients in there on end of life situations are allowed to have ALL their family in there to say goodbyes so I know they "bend" the rules.
It just left a really bad taste in my mouth that on top of everything else that I have to deal with up there I didn't need that today.
Enough about me, Karl's spirits are up and he's ready to go go go.
His phone in the room # 279 room phone 972-981-8225. Just ask for Karl Matthiessen.
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